Please note this page is incomplete and in draft
Raising neurodivergence is a project being born out of a desperate need for change. The way that neurodiversity is discussed and portrayed in our society, and the education and support that is available, is insufficient and unacceptable. There is a huge lack of understanding, and neurodivergent people are being let down in every possible way. I want to work with others to change the way people understand neurodiversity, and to ensure that the recognition and support for neurodivergent people allows them to live freely and equally, their best lives.
Autism doesn’t need awareness anymore. People are aware of it. They are aware of all the other “conditions” too. What they are also are is, largely uneducated about what these really are, prejudiced about the people who “have” them, and at best unaccommodating to them, if not down-right offensive and abusive in some cases. However, the problem in essence does not lie with the individual, though they all make, and are responsible for, their choices. It lies with a system of inequality, based on fear, insufficient education, and a lack of empathy. This system must change.
We need to insist upon the proper definition of neurodiversity and neurodivergences, and the proper education of society regarding these, and the huge benefit that diversity provides. This will lead to the proper acceptance of neurodivergent people as, not just equally valuable, but an important factor in a successful society. Alterations and accommodations will then become standard practice to ensure that all people are able to thrive and therefore contribute their immense worth to society.
Wouldn’t it be better if?
I want to scrap all the ideas of any categorisation of neurodivergence
at all, and simply recognise (notice I did not use the word diagnose) someone as neurodivergent and then work with them
to develop their own unique profile that helps them and others create an environment around them that maximises their chance of meeting their needs and achieving their goals
. I mean, I believe everyone needs this, but it is important to recognise that society has been built for people whose brains work in a particular way to thrive, and so additional alterations and accommodations will be necessary to support neurodivergent people to thrive equally
However, I think we are a way off persuading any powers-that-be that all their labels are shit and unhelpful, even though it’s true. So what could we hope for in the shorter term?
ok what about in the mean time?
For the time being, I would settle first for some consensus around what constitutes neurological difference, rather than this being very muddled up with mental health conditions, behaviour and mood disorders, learning difficulties (not specific) and attachment problems, among others most likely.
My personal view right now, based solely on my current knowledge and not on peer-reviewed research, is that these current “so-called conditions” would be included in some way as neurodivergences: Autism, Aspergers, PDA, ADHD, ADD, SPD, OCD, Dyslexia, Dyspraxia, Dyscalculia, and Dysgraphia. I would like to see these defined by more appropriate titles and appropriately categorised.
I mean the concept of the labels is rubbish enough but don’t even get me started on the actual names of them – they are just wrong!